Follow-Up Care and Long-Term Outlook for People with X-Linked Hypophosphatemia
To ensure overall well-being and health in the long term, people with X-linked hypophosphatemia should get follow-up care on a regular basis. This process should be done by a specialist or primary care physician who is experienced in the condition. Since the disease may affect multiple body functions, it is necessary to get coordinated care from a group of different specialists from different departments. Depending on the health condition and diagnosis of the patients, the following specialists may be included in the coordinated care: genetics, audiology, nutrition, occupational and physical therapy, dental care, pain management, endocrinology, or orthopedics. [7]
With phosphate treatment on a regular basis, people with X-linked hypophosphatemia may improve the symptoms over time. Nevertheless, adults with this condition would not notice any improvements in their growth or height. The key is to have a consistent and regular treatment plan. This is important to improve the quality of life, help reduce the severity, as well as prevent the symptoms from worsening. [8]
